Feel the awesome.
02
Sep 2010
Heart
First of all, my friend Leah made this, and I’m in love with it :).
Jeremy and I went in this morning for another ultrasound. This was the first time we had been in since we got the results about Paxon’s deletion of chromosome 4. It was interesting to witness the change in composure of the doctors and ultrasound techs – definitely more of a serious, somber look on their face when they talked to us. And of course we had to again clarify that we want to continue with the pregnancy. I guess for legal reasons they have to make sure, but it’s getting all a bit annoying being asked the same question over and over again. It’s not an option. Yes, we want our boy. Period. Could we move on now please.
The ultrasound tech and doctor looked at Paxon’s heart for almost 2 hours. There were two concerns they were mainly looking for, but Paxon busted these odds and there doesn’t seem to be concern with those issues. The doctor said that basically she doesn’t see anything glaringly wrong with his heart, but that she wants us to get a second opinion. I like second opinions, mostly because it means we get to see our boy for another couple of hours. Jeremy and I feel so much more in love with Paxon watching him wiggle around in my belly. He was sucking on his toes and his fingers, and he got the hiccups which was so adorable to see. We just love him.
We got a little more information about what’s going on, but really big emphasis on little. There’s just isn’t a lot out there. I guess most babies don’t make it to birth either because of abortions or they are just not strong enough. The nice stats sheet that they gave us explaining characteristics that children experience from this deletion was taken from a pole of a whopping 19 children. I guess it’s just that rare, which again is not a big surprise to Jeremy and I, we’re realizing that’s just how we do things.
The information isn’t complete to us, and therefore not that helpful. It says that 9 out of the 19 babies didn’t make it to 2 years. But that’s it, just a number, we don’t know anything else about these kids like whether they had more severe heart problems. Basically, all in all, we’re getting the feeling that no one really knows. And, no one may know until we see our boy.
So, tomorrow we’re going in to meet with our genetic counselor to talk more specifically about things, but again, we’re not really sure how many certainties he can give us. And, in 4 weeks when Paxon’s heart is more fully developed we’ll go back in to meet with another Neonatal so and so, and a Neonatal so and so surgeon…sigh…all the details are getting fuzzy. BUT, I think all in all we left there a little encouraged. They didn’t see anything wrong right now, we’re going to celebrate this fact.
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Asher is working on dressing himself, ha! I laid out some clothes, left the room, and came back to this ensemble. I asked him if I could take a picture and he gave me this model, hip kicked out pose that cracked me up!
We’re also so happy to welcome more family to AZ! Asher just inherited 4 more cousins, and buddies. We’re so excited to enjoy life with more family here!
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The teamASHER Silent Auction
A Slice of Yesterday
Love the Asher graphic!
So happy that you are encouraged, even if it is a little. One step at a time, right? And glad that you got to watch Paxon play around in your belly, what a special time.
You were on my heart today. I am so moved by the outpouring of love, concern and prayer for your family. It is amazing.
Can we talk about that hip pose for a minute??? Where has he seen that??? SO cute! He knows how to bring the joy!
Love you guys.
Love the new graphic! It’s perfect! A two hour ultrasound normally would be such a drag….funny how things change. I’m so glad got to hang out with your boy!
I love the new TEAM ASHER AND TEAM PAXON!!!!!!! We are so rooting for all of you and sending you all of our love. We will continue to pray and praise the Lord for Paxon’s awesome little heart and his life. He is amazing…period. I can feel your love for him and that makes my momma heart swell with love too. I’m so happy Shanny and fam are there too. Can’t wait to come visit, Rach. LOVE YOU!
So glad that you got to see your little boy for 2 hours today and I am also so glad that you have some encouragement. I have been reading about the whole thing…and like you said there is just not much out there and have been praying that nothing was wrong with his heart and for right now my prayer was answered and that is so amazing. I pray that things go smooth and that Paxon continues to fight the odds.
Love you!
So thankful for a little bit of encouragement today!! And what a blessing to get to see him doing such “normal” baby things during the ultrasound…just precious. Will be praying for more encouragement to come!
And that picture of Asher…oh my goodness!! ADORABLE!!! Love it! He really is just such a joy!
We love you and are praying for Paxon. And Asher Olimb is a stud!
We’re rejoicing with you guys in this encouraging news! Go Paxon! We will continue to pray for all of you.
And, how I love, love, love Team Asher & Team Paxon: ‘beeshing badness worldwide.’ How awesome are they?!
The picture is awesome. I am glad that you left feeling encouraged. It’s hard not having tons of information but to be able to see Paxon moving and growing is a neat thing. We will not stop praying!
LOVE Asher’s pose. What a hoot! 🙂
I am so glad you got a little visit with your littlest man. I always liked to think of those visits as a little date God gifted me with, to have some special time to visit with the wee one. We will KEEP praying! And we will keep beeshing badness 🙂
and embracing the bits of greatness.
Rachel, you have fantastic friends! Thanking God for the rays of sunshine he is shining in the darkness. You are loved!
That picture of Asher is way to cute!Your friend also did a great job.
Love the graphic! Brothers UNITE! So glad to hear the news about Paxon’s heart…I can’t believe you had that long of an ultrasound…but how great that you had that much time to watch him do his thing! What a testimony to those doctors of how much you love and value Paxon’s precious life…although I wish they would back off and stop asking if you want to continue (stamp your file YES!!!). Continuing to pray for you all!