Feel the awesome.
29
Aug 2010
Results.
We got the results about our baby Paxon on Friday. All week long we’ve been struggling with wanting to know what’s going on with our baby, but not wanting to know for fear of what might come. Now that we know, I wish someone could make it all go away because our hearts are breaking for our sweet Paxon. Unfortunately, this is going to be yet another emotional, written through tears, post…but so many people have been so faithful to pray for Paxon and our family, and we felt like you should know what we know.
I don’t think there is any flowery way to say what we’ve found out, except to tell you exactly what our genetic counselor relayed to us. Paxon has a deletion on chromosome 4, which our counselor said is unfortunately a big one. He said that babies with this deletion can have short stature, heart problems, severe to profound mental retardation, and usually die before they are 6 months old. It just kills me to even type that out. I was in shock when he threw this news at me, I forgot to ask him if Paxon also has cystic fibrosis…but I’m not sure that even matters right now. He said that he’s seen a few cases where the children have lived until they were 1 or 2 years, but most of these babies don’t make it that far. I’m pretty convinced that thinking about planning your child’s funeral is the worst feeling ever imagined.
We will see the doctors again this week and we have a ton of questions about how the rest of the pregnancy with go, delivery, surgeries, will he be strong enough for surgeries, will we be able to bring him home…We’ll also be having another ultrasound so they can look more closely at his heart. So, we should have more information this week, which may or may not be a good thing.
One thing we do know, we’re not giving up on our boy. We’re going to fight like hell for him and we’re going to squeeze and love him for as many days the Lord allows us to have with him. Please don’t stop praying for our baby!
—–
Jeremy was unfortunately gone and unreachable these past few days, we had no idea we would be getting the results so soon. My parents had already planned to fly in this weekend to spend time with Asher and me, and I’m so thankful they were here. There hasn’t been a lot of fun going around this house lately, so Asher having his Grandma and Grandpa to build towers and “beesh” bad guys with was such a blessing. We did take Asher for his first round of bowling while they were here, and of course he loved it. Lots of spins and jumping and his favorite “I did it!” phrase. Thank you so much, Dad and Mom, for all the groceries, mowing our grass, and loving Asher and me. I’m so thankful you were here with us this weekend!
43 Comments
Leave a Reply
The teamASHER Silent Auction
A Slice of Yesterday
Oh my friend…I’m sitting here crying, not even knowing what to say other than our hearts are breaking with you and we are here for you…anything you need that we can do from here. We’ll continue to pray…praying for miracles and praying for as many precious days with sweet Paxon as the Lord will allow. We love you guys so much.
My heart is breaking as I read this post. I can’t imagine the pain that you guys are going through right now. We will continue to pray for your sweet family and this precious little baby boy, Paxon. Hugs. Lisa
My dear, sweet friend. There are no words. You show your unending beauty through your strength, your faith and your perserverance. I am thinking and praying for you and your beautiful boy constantly. You are a warrior and I am so proud to know you.
Rachel,
I’m so sorry for this terrible news. I am praying for you and your sweet little Paxon. Praying for you all as you seek answers from the doctors this week. Praying that the God of all comfort will carry you through this trial and that His name would be made known through you guys and baby Paxon.
In Christ’s love,
Lindsey
O sweet Olimb family. I am in tears over this…I am so sorry. I hope that you all feel loved and supported during this. I am sure anyone here would jump through hoops to help in any way, so please ask! I would love to be able to do anything in any way big or small that would help or bless you – just ask! I love you guys and will continue to pray BIG prayers for you!
big hugs
summer
My heart is breaking with you. We will never stop praying for you.
I’m not even sure what to say – so I am going to leave it at this… I love you, I’m sorry, I’m praying and I believe that you two are very likely the strongest and most loving parents I have ever known in my life!!
I don’t know what to say other than I am so sorry to hear of those results. Crying and hurting for you. Praying for God’s comfort, His strength and wisdom for you all during this time. And, of course, already thankful for His healing power. Our church is praying for your family.
Dearest Friends, my heart breaks with yours and the information you have received. Only God can touch you and comfort you exactly the way He knows is best, but understand that we will continue to uphold you, Jeremy, Asher and Paxton in our prayers. Our God is great in His love for you. May you find some comfort in knowing so many our upholding you in prayer at this most difficult time in your lives. Olimbs, the Fulmers love you dearly! I’m only an arms stretch away.
Oh Rachel, I am so sorry…those words seem pathetic right now. You know my heart is breaking for you and you know our family is dedicated to praying for your family. If you need to scream…call me! I’ll email you later!
We love you and are praying for you.
Peter and I are sitting here trying to dream up something to say and there are just no words for this immense trial you are in. We love you and are praying for and and sweet baby Paxon. I have to agree that you are possibly the strongest parents, and people I’ve ever known.
We are praying and will continue to pray for you and your family. I am so very sorry for the news of Paxon’s condition, but pray that our great God, who created Paxon, will comfort you moment by moment.
Oh Rachel… I am in tears with you! My heart breaks for you. I will not stop praying for sweet little Paxon and your family. Sending Love.
Oh Rachel…no words to even say right now. Not one word can make this gut-kicking and heart-wrencing pain go away. Tears are streaming…my heart is broken for you my dear friend. So we turn to our Father…the only One who sustains. We will most definitely keep praying for sweet Paxon…and for all of you. You are amazing, Rach…and both Asher and Paxon are so so lucky God chose you for them. Love you. Em
no words…just tears and prayers. I love you guys. Praying like Noelle said for big miracles and joyful days with Paxon.
Praying that God will fill your hearts with the peace that only He can give.
We are heartbroken with you. We won’t stop praying for beautiful Paxon and for your entire family. We love all four of you very much.
You are just about the bravest parents I can imagine. Any child would be lucky to have such loving, devoted, and resilient people fighting for them.
We too, will not give up on praying and loving this little guy forever. Rachel, Jeremy, Asher, and now Paxon…we love you!
Gosh, don’t have words to express how grieved and burdened I fefl for each of you. Thankfully Jesus knows how to comfort us in the midst of pain, suffering & trials. Praying you can cling to Jesus & praying for sweet days/weeks/years with baby Paxon 🙂
Praying that God brings all of you and little baby Paxon comfort and strength during this time. I have been thinking and praying for all of you daily.
God can do amazing things rach, so i wont stop praying!
My heart is breaking for you and little Paxon. I don’t have words other than I love you dearly and will continue to pray.
staggering is all I can think..words are so puny. I am praising God for your son Paxon’s life. I believe there will be incredible, sweet times with your baby boy. My prayers are with you. O God please comfort this family.
Olimbs, we are crying out to our God with you. “We do not know what to do, but our eyes are upon You.” 2 Chronicles 20:12B
Stunned…but committed to praying on your behalf…for each one of you. Cling to God’s promises especially Rom 8:28, and I am confident that HE is the only one who can sustain you. HE knows exactly where you are.
Romans 8:26-28 from the Message, “Meanwhile, the moment we get tired in the waiting, God’s Spirit is right alongside helping us along. If we don’t know how or what to pray, it doesn’t matter. He does our praying in and for us, making prayer out of our wordless sighs, our aching groans. He knows us far better than we know ourselves, knows our pregnant condition, and keeps us present before God. That’s why we can be so sure that every detail in our lives of love for God is worked into something good.”
Love you, crying with you and praying for you!
I am so, so sorry you guys! I, like so many others, don’t know what to say other than I’m praying for you. God be with you, and comfort you, and give you the strength to bear the days ahead. I’m praying for big things and for healing.
Our heart breaks with yours. Jim,Alexis and I will be praying for you. I love your strength and courage….only God gives that. These are hard,hard times, but our Father is still on His throne and He loves you and will comfort you.
Rachel,Jeremy,Asher and dear Paxton our hearts are broken with sorrow of your news. Please let us know what, when and where we can be of assitence. Miracles can happen with God. “I can do everything through Him who gives me strength”.We will continue to pray!
My heart is hurting for you guys as my eyes are filled with tears. We will be praying for all 4 of you and praying for a miracle for precious baby Paxon.
Dear Olimb Family:
My sister, Beth Border, forwarded your blog to me. I am so sorry to read your devastating news. I just wanted to drop you a note that I am one of many who will be praying for a miracle, and peace during this difficult time.
During this time of tremendous grief and heartache I praise God for the love and support He has wrapped around you. Thank you for letting His people grieve with you, pray for you and display the love of Jesus. You are loved!!
Rachel, I am so sorry to hear the news. You and Jeremy are such great people. I’m at a loss for words, I can only begin to imagine how you are feeling. Please let me know if there is anything we can do. Paxon and all of your family are in my prayers.
Rachel and Jeremy I am at a loss. I’m just so stunned. This is not at all the result that I expected. I am so sorry. I love you guys and will keep you in prayer. You know that anything you need – I am there.
I don’t know what to say. I’ve stared at this screen for hours with a heavy heart and tears. I’ve never longed for God’s kingdom to come so much. We love you and pray with you.
Dearest Rachel I am so sorry you both received such sad news.. may god hold you and comfort you and give you strength…. I am happy your parents were able to be there for you all, what a blessing…
Rachel,
Thinking of you today, and praying for God’s comfort and care to be all over you, Jeremy and your precious little boys!
Rachel and Jeremy, your sorrow and your strength are beyond words. Thank you for sharing the Olimb story as it unfolds. My thoughts are with you.
I’m also going to repeat what Seppo said: You are just about the bravest parents I can imagine. Any child would be lucky to have such loving, devoted, and resilient people fighting for them.
whew…no words to say right now…crying… loved your passionate words of fighting for him, loving him, and not giving up. It’s a strong, supernatural thing that’s happening…hope and devotion in the midst of intense grief. We love you guys.
sweet Rachel, God is surely holding you in his arms, its the only way any mother could embrace this kind of pain and still be able to face each new day.. It’s so hard to understand the why’s and why nots, but one thing that is very clear to everyone who knows you and loves you ….The gift that’s being given, is the one that God is giving Paxon……a very special mommy, daddy and big brother. A sad, but very beautiful love story, the kind of love story that only He can write. As always you are in my prayers, and will I continue to pray for the times ahead.
Dear Jeremy and Rachel,
We have been praying for Paxon since we heard last week.. we read this verse a lot when I was pregnant with Tiana Psalm 139:13-18..”For you have formed Paxon’s inward parts; You are weaving him in Rachel’s womb. We give thanks to You Lord for Paxon is fearfully and wonderfully made; Wonderful are Your works, and my soul knows it very well! Paxon’s frame is not hidden from you while he is being formed in utter seclusion, as he is being woven together in Rachel’s womb.You see Paxon and everyday of his life is recorded in your book. Every moment is laid out before a single day has passed. How precious are your thoughts of Paxon if we could count them they would outnumber the grains of sand”
God is with you both and is faithful to not give you too much that you can’t handle with His strength..He will never leave you or forsake you! God is also a miracle worker..Tiana wasn’t supposed to live to even make it to 36 weeks, so God can choose to heal Paxon!That is what we will be praying for! If you want to talk or pray you can call us at 480 710-2949(Curtis)480 710-2927
(Angela) we are here to comfort you with the comfort God had given us with similar circumstances:) With all our love and prayers to you both
Angela and Curtis